World Duchenne Awareness Day represents a great action of the global Duchenne Community to raise awareness for children and young adults living with Duchenne and Becker Muscular Dystrophy.

This year the special theme that deserves more attention is “Duchenne and the brain”.

The same protein that is missing in the muscle causing muscle breakdown, is also missing in the brain. This can cause problems like learning difficulties and behavioral issues such as ADD (attention deficit disorder), ADHD (attention deficit hyperactivity disorder), OCD (Obsessive compulsive disorder) and autism. For many families, these issues result in more stress and worries in daily life than the physical problems.

What the DMD Community pleas for is early screening, appropriate testing, more research and better care on this aspect of the disease. This is absolutely needed in order to have everyone reach their full potential.

Italfarmaco has been working to develop drugs to slow down DMD and BMD disease progression.  

Italfarmaco is proud to support the Duchenne Community and to recognize the World Duchenne Awareness Day. “Together we are stronger”.